CDCAN
CALIFORNIA DISABILITY
COMMUNITY ACTION NETWORK
DISABILITY RIGHTS
NEWS REPORT
#0030-2006 March 19, 2006 -
Sunday
Advocacy Without Borders:
Connecting people with disabilities & seniors to rights and unified
action
1225 8th
Street Suite 480 - Sacramento, CA 95814 916/446-0013 Fax:
916/446-0026
Marty Omoto - director email: martyomoto@rcip.com
website: www.cdcan.us
Medicare Part D Drug Program
Crisis
* GOV. EXTENDS EMERGENCY
DRUG PROGRAM TO APRIL 16
* URGES FEDERAL
GOVERNMENT TO PROVIDE NEEDED DATA
* REQUESTS FEDERAL FUNDING FOR EMERGENCY
COSTS
*
CRISIS LIKELY IN APRIL DUE TO DRUG PLAN
CHANGES
* THOUSANDS OF PEOPLE WITH
DISABILITIES/SENIORS
IMPACTED
SACRAMENTO - Citing concerns of another likely crisis
largely resulting from changes to the Medicare Part D Prescription Drug Plan due
to occur in early April, Gov. Arnold Schwarzenegger extended the State's
emergency drug coverage until April 16, 2006 and also urged the federal
government for help in resolving problems caused by the new federal drug
program. State officials and
advocates advise that persons with disabilities or seniors in need of
medications and who are eligible for both Medi-Cal and Medicare should bring
their Medi-Cal card and Medicare drug card or Medicare acknowledgment letter to
the pharmacy or direct the pharmacy to review the latest (March 17) Medi-Cal
Provider Bulletin. Advocates across the State praised the Governor's
action.
The Governor's action,
authorized under SB 1233 and announced on Friday, March 17,
ensures that over 1 million persons with
disabilities (including persons with developmental disabilities) and seniors who
are dually eligible for Medi-Cal and Medicare will still be able to obtain
needed medications under the new federal Medicare Part D Drug Program that began
January 1, when the federal government
took responsibility for prescription drug coverage for that population in
California and across the nation. The transition of these individuals to
federal Medicare drug plans in just one day resulted in an error rate of 20%
impacting over 200,000 persons with disabilities and seniors in
January.
SB 1233 Gives Governor Authority To Extend Emergency Drug
Program
SB 1233 provides temporary
relief to tens of thousands of persons with disabilities and seniors by
extending the emergency program originally established by the Governor
through an executive order he issued on January 12, and later extended in
January by the passage of AB 132, which expired on February 11. SB
1233 does the following:
* Continues
the emergency drug coverage program the state originally established on January
12 through February 15. Provides the Governor with the authority to extend it
further with additional 30 day extensions each, but not beyond May 16, 2006
(unless new legislation extends it beyond that date), which has done twice so
far, including his action on March 17.
* Authorizes the Governor and the California Department of Health
Services to be the "payer of last resort" for persons who are dually eligible
for Medicare and Medi-Cal and unable to get their medications through the
Medicare program to ensure no person who is dual eligible leave the pharmacy
without their needed prescription drugs.
* This means that pharmacies
who are participating in the Medi-Cal or
Medicare drug programs are required to fill prescriptions, and
will be paid for medications under the
emergency drug coverage program. This means that people who are dually
eligible for both Medi-Cal and Medicare who need the medications can receive it,
even if there names do not show up on the Medicare computer program, or their
plan or the price of the medications is not correct.
* Continues
authorization for the Department of Health Services to spend up to the $150
million cap in state funds, originally authorized in AB 132, for the purpose of
the emergency drug coverage program and to seek reimbursement from the federal
government..
A new Medi-Cal
provider bulletin was issued on Friday, March 17 by the California Department of
Health Services and is available at the official Medi-Cal website at
http://www.medi-cal.ca.gov OR visit the
CDCAN website at www.cdcan.us for a copy of the latest Medi-Cal
bulletins, or see the special CDCAN Bulletin issued Sunday (March 19).
Hundreds of Thousands of People With Disabilities & Seniors
Impacted
* In mid-January, the
California Department of Health Services, which oversees the state's Medicaid
program (called Medi-Cal) estimated that over 200,000 of the State's 1 million
persons with developmental or other disabilities and seniors who are dually
eligible for both Medi-Cal and Medicare, were unable to obtain their
needed medications or had significant problems - an error rate by the federal
government of over 20%.
* The
State says that most of these people have received their medications through the
emergency drug coverage program.
Adding to that number, at the beginning of each month (February
1, March 1, April 1, etc), the number of Californians who could be impacted by
the Medicare Part D Drug Program crisis increases by 10,000 persons with
disabilities and seniors who are newly eligible for both Medicare and Medi-Cal.
These newly eligible persons are likely to experience problems due to backlog by
the federal government and/or by the eight designated drug plans in
California.
* As of January 19,
2006, the State had filled 77,514
prescriptions under the emergency drug plan.
* As of January 25, 2006, the
State had filled 141,211 prescriptions at a cost of $11.4
million
* As of
February 8, 2006, the State had
filled 278,929 prescriptions at a cost of $20.3 million in state general fund
dollars.
* As of March 16, 2006,
the State had filled 585,864 prescriptions for 190,846 people who are eligible
for both Medi-Cal and Medicare with at a cost of nearly $39.7 million under the
emergency drug coverage plan (the cost being reimbursed by the federal
government).
Important Note:
people and organizations impacted by this emergency drug coverage extension,
including people with disabilities and seniors, their families, pharmacies,
regional centers, community based organizations and others should pass on the
information of the extension and print out or tell the pharmacy to print out the
latest official Medi-Cal provider bulletin that will explain the details of the
extension. A new provider bulletin was issued March 17 and can be found at
the official Medi-Cal website:
http://www.medi-cal.ca.gov OR visit the
CDCAN website at www.cdcan.us for a copy of the latest Medi-Cal
bulletins.
GOV RAISES MAJOR
CONCERNS OF NEW CRISIS IN APRIL IF EMERGENCY DRUG COVERAGE
ENDS
The Governor in his
letter, dated March 17, to US Department of Health and Human Services Secretary
Michael Leavitt requested extension
to at least April 16, of federal funding to reimburse California for the cost of
the emergency drug coverage program, warning of several factors - including new
changes to the Medicare Drug Program scheduled to occur on April 1, that will
have major impact to tens of thousands of people with disabilities and seniors
who are eligible for both Medicare and Medi-Cal.
The Governor said he was
concerned about the "convergence of these factors may cause an increase in
problems in April.
"The normal problems that occur on the first of the
month would be combined with problems caused by the end of the transition
period, the shifting of people out of multiple plans and the end of the Medi-Cal
100 day drug supply," said the Governor in his letter to Leavitt adding that
"For these reasons, I believe April 1, 2006, is the wrong time for California to
end its emergency program and I am requesting the federal government continue
reimbursing California for its emergency program beyond that
date."
The Governor also
complained of the lack of information coming to the states - and California
specifically, from the federal Centers on Medicare and Medicaid Services (CMS),
that the US Department of Health and Human Services oversees and urged Secretary
Leavitt to work to provide the needed data to help resolve the current crisis -
and to avoid new problems in April.
The problems and concerns that
could have major impact to people with disabilities and seniors who are dually
eligible for both Medi-Cal and Medicare (including thousands of people with
developmental disabilities, mental health needs, persons with traumatic brain
and other injuries) at the end of March and early April are:
100 DAY SUPPLY &
TRANSITION PERIOD FOR "NON-FORMULARY" DRUGS
ENDING
* In December 2005,
at the recommendation of the federal Centers on Medicare and Medicaid
Services, the California Department of Health Services allowed persons
with disabilities and seniors who were eligible for both Medicare and
Medi-Cal to get a 100-day supply of drugs to cover them during the
transition, which will begin to run out by the end of
March.
* In addition to that, on April
1, the Medicare Part D Drug Program plans will end their transition period for
existing dual eligibles. This transition period has allowed persons with
disabilities and seniors (who are eligible for both Medi-Cal and Medicare)
to continue to receive their current non-formulary (or approved list)
medications while the new Medicare Drug plans were able to assess the need for
their current medications or transition them to new medications.
Problem By April 1 for Persons Eligible for Both Medi-Cal and
Medicare:
* The 100-day
supplies will begin to run out at the end of March - impacting thousands of
people with disabilities and seniors (they will be able to obtain medications
under the State's emergency drug coverage however, though the State has no
commitment yet from the federal government to cover those costs.
.
* With the transition period
ending on April 1, persons who are eligible for both Medi-Cal and Medicare and
who have not completed the process with their doctor of either switching to a
formulary-covered drug or getting approval of a non-formulary drug, will
have problems accessing their medications. The California Department of
Health Services says that no data has been provided by the federal government
(Centers on Medicare and Medicaid) to any state on how well this process has
worked or how many people have used it - information that the Governor has
requested in his letter to the US Health and Human Services Secretary on Friday
(March 17).
TRANSITION PERIOD FOR PERSONS MISTAKENLY ENROLLED IN
MULTIPLE DRUG PLANS
* Reportedly, April 1, 2006, is the date when
the federal Centers on Medicare and Medicaid Services (CMS) intends to correct
the problem of people who are enrolled in multiple drug plans.
*
Beginning on this date people will only be able to get their prescriptions from
"their plan of record" though it is not clear, according to State officials, how
this will done
Problem By April 1 for Persons Eligible for Both Medi-Cal
and Medicare:
* Many people are likely getting their critically
needed prescription drugs from the wrong plan and many may have gone through the
exception process with the wrong plan.
* Advocates and State officials
fear that people could temporarily lose their coverage - which is another reason
cited for continuing the state's emergency drug coverage.
* The
Governor and California Department of Health Services officials have asked the
federal Centers on Medicare and Medicaid for information on how this problem is
going to be corrected. As of March 17, State officials report that the federal
government has not provided the State with any information regarding this
problem, how a transition will be implemented or even how many people in
California will actually be impacted.
CAPACITY OF FEDERAL GOVERNMENT TO HANDLE CASELOAD AND
PROBLEMS
* State officials say
they have "insufficient information" from the federal government on the capacity
of the federal Centers on Medicare and Medicaid staff to handle increased
caseloads that is likely to result if California terminates its emergency drug
coverage program and shifts up to 10,000 prescription problems a day for
resolution by the federal government.
* State officials (and advocates) say that the long time lag and
problems for persons who are dually eligible for both Medi-Cal and Medicare and
are new enrollees and those people who are dual eligibles who change plans will
continue.
Problem By April 1
for Persons Eligible for Both Medi-Cal and
Medicare:
*
Both advocates and State officials say
that persons who are enrolling for the first time, or are changing drug plans
have been told - and will likely to be continue to be told that they must
pay high co-pays or deductibles because their low income subsidy information is
not accessible by the pharmacist trying to fill their prescription.
Also, due to these problems, at
the beginning of each month, according to the California Department of Health
Services, the State sees a significant increase in the numbers of people with
disabilities and seniors who need the emergency drug coverage program.
* The Governor in his letter
to the US Department of Health and Human Services complained that California has
asked for "more detail" on the federal Centers on Medicare and Medicaid
Services' capacity to handle increased caseloads on "numerous occasions" without
result.
* State
officials - and advocates have raised major concerns about the ability of the
federal government (and the 8 drug plans that cover persons dually eligible for
Medi-Cal and Medicare in California) to effectively respond to the likely
dramatic increase in problems in April if California ends its emergency drug
coverage program.
* Ending the emergency drug coverage program would have a
significant impact on the eight drug plans in California that over 1 million
persons dually eligible for Medi-Cal and Medicare are enrolled in.
LETTER FROM GOVERNOR
SCHWARZENEGGER
TO FEDERAL GOVERNMENT (SECRETARY MICHAEL
LEAVITT)
March 16, 2006
The Honorable Michael O. Leavitt
Secretary of
Health and Human Services
U.S. Department of Health and Human Services
200
Independence Avenue, S.W.
Washington, DC 20201
Dear Mr.
Secretary,
I write today to request an extension of California's Section 402
waiver related to the new Medicare Part D Prescription Drug Benefit through at
least April 16, 2006. Prior to that point, I would request that we jointly
assess whether the State's waiver needs to continue beyond that date.
The Medicare drug program is working well for most people and I
appreciate the Centers for Medicare and Medicaid Services (CMS) extension of
California's Section 402 waiver through March 31, 2006. However, I am
deeply concerned that on April 1, 2006, several events will take place that may
result in significant access problems to needed medications for people who are
eligible for Medicare and Medicaid. These problems may be very acute in
California, where we have almost 1 million people dually eligible for Medicare
and Medi-Cal, with more than 10,000 new dual eligibles coming onto the rolls
each month.
As you know, on January 20, 2006, I signed legislation
that established an emergency program intended to serve as the payer of last
resort for individuals who are unable to receive their prescription drugs from
Part D due to problems in the Medicare system. The program can be
extended, at my request, through May 16, 2006. Today, I have extended the
program through April 16, 2006.
Between January 12 and March 14, 2006,
California's emergency program has provided 567,682 prescriptions for 188,000
different beneficiaries at a cost of $38.5 million. And while the trend in
the number of prescriptions covered each day has decreased slightly from the
first days of the program, the average remains around 10,000 prescriptions
provided each weekday. Large numbers of these prescriptions are provided
by pharmacies who specialize in services to people in nursing facilities, people
with AIDS/HIV, people with mental diseases and people who require home infusion
therapy.
I am not able to end our emergency program on April 1,
because of the following concerns regarding disruptions in dual eligibles'
access to needed medications.
1. On April 1, the Part D plans will
end their transition programs for existing dual eligibles. This transition
period has allowed these patients to continue to receive their current
non-formulary medications while the plans were able to assess their need for
there medications or transition them to new medications. Without this
transition period, any one who has not completed the process with their
physician of either switching to a formulary-covered drug or getting approval of
coverage of a non-formulary drug will have problems accessing their current
medications. No data has been provided to states on how well this process
has worked or how many people have used it.
2. We understand
from staff at CMS that April 1, 2006, is also the date when the federal
government intends to correct the problem of people mistakenly enrolled in
multiple plans. Beginning on this date people will only be able to get
their prescriptions from their plan of record. While I agree that people
should only be in one plan, I am concerned about the transition issues
associated with this change. It is likely that many people are getting
their critical medications from the wrong plan and many may have gone through
the exception process with the wrong plan. California has asked for
information on how this problem is going to be corrected and the plans for
moving people's drug coverage from enrollment in multiple drug plans to
enrollment in only their plan of record. CMS has not provided the State
with any information on what is occurring in this area, how this transition will
occur or even how many people are affected.
3. The enrollment lag
issues related to new enrollees and people who change plans will continue,
resulting in dual eligibles being told that they must pay high co-pays or
deductibles because their low income subsidy information is not accessible by
the pharmacist trying to fill their prescription. Due to these problems,
early every month California sees an increase in its emergency drug coverage.
4. During December 2005, at CMS's urging, Medi-Cal allowed dual
eligibles to get a 100-day supply of drugs to cover them during the transition.
These 100-day supplies will begin to run out at the end of March.
5. The State has insufficient information on the capacity of CMS staff
to handle casework that is likely to result if California terminates its program
and shifts up to 10,000 prescription problems a day to CMS staff for
resolution. We have asked for more detail on CMS' capacity on numerous
occasions.
6. We are also concerned about the ability of drug plans to
handle an increased volume of problems in April if California ends its emergency
program. As compared to other states, California has a relatively small
number of drug plans (eight) which cover dual eligibles. This means that
nearly 1 million dual eligibles are concentrated in a handful of plans and
ending our program would have a significant affect on these
plans.
I am concerned the convergence of these factors
may cause an increase in problems in April. The normal problems that occur
on the first of the month would be combined with problems caused by the end of
the transition period, the shifting of people out of multiple plans and the end
of the Medi-Cal 100 day drug supply. For these reasons, I believe April 1,
2006, is the wrong time for California to end its emergency program and I am
requesting the federal government continue reimbursing California for its
emergency program beyond that date. The problems in the Medicare Part D
implementation have been reduced, in part because of state programs like
California's and our commitment to work together to provide this federal
benefit. We have to ensure that we do not end the State's program at a
time when a confluence of difficult transitions will occur and likely result in
significant prescription access and data system problems.
In addition, I
am requesting once more data that would allow California to end its emergency
drug program. In response to requests for data from many states including
California, CMS has provided the National Association of State Medicaid
Directors (NASMD) with a draft set of selected metrics to review Medicare Part D
performance. For my State to be confident that our residents
are protected, we need data from CMS that proves the systemic problems in the
program have been reduced to a level where CMS staff and the Medicare plans have
the phone and staff capability to quickly resolve any remaining problems.
At this point we have not been provided with sufficient data to assess program
and plan performance in critical areas. Without this data, it will be
nearly impossible for California or your Department to make an informed decision
as to when the State should discontinue its emergency program.
I believe
that our drug program should be used only as the payer of last resort. To
assist both CMS and the State in assessing the need for the State's program, we
have jointly agreed to review program usage by pharmacies in California.
I appreciate your willingness to work with me to assure that California
is fully reimbursed for our efforts to protect our most vulnerable
beneficiaries. I encourage you to extend the deadline through at least April 16,
2006, or longer as needed to ensure the problems I have identified are
resolved. I intend to continue to work cooperatively with you to ensure
the nearly one million Californians who are dually eligible for Medicare and
Medi-Cal have access to the prescription drugs that are essential to maintaining
their health.
Sincerely,
Arnold
Schwarzenegger
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MANY
THANKS to Training Toward Self Reliance, UCP, California NAELA, The University
Affiliated Programs, CHANCE Inc, Parents Helping Parents, Arriba, Strategies
Toward Empowering People, Parents Helping Parents, Asian American parents
groups, Resources for Independent Living and many other Independent Living
Centers, several regional centers, People First chapters, IHSS workers, other
self advocacy and family support groups California Disability Rights Inc ,
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Services and the CA Health and Human Services Agency and other agencies, and the
State Legislature and staff, the Legislative Analyst Office. Good people
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